Bear Cottage is the first childrens hospice in NSW,
a place where children and young people with terminal illnesses
and their families can stay from time to time and receive rest
and medical care in a homelike environment.
Bear Cottage at Manly
Bear Cottage is located on a beautiful sheltered site in the grounds
of St Patricks Estate Manly, providing quiet surroundings
and the nearby attractions of one of Sydneys traditional
holiday destinations. In addition to the palliative care facilities
for children, Bear Cottage contains the amenities of a home with
10 childrens bedrooms, family accommodation and recreation
areas including a spa room, multi-sensory room, teens room
and quiet room.
The role of a childrens hospice
Hospices enhance the quality of life of patients with life-limiting
illnesses and ensure that the time remaining for patients and
their families is as rewarding and relaxing as possible. The needs
of a child with a life-limiting illness are different to those
of an adult. The emphasis is on family care and respite. As a
childrens hospice, Bear Cottage differs from places such
as Ronald McDonald House, which provides much needed accommodation
near a childrens hospital for families whose children are
being treated but does not provide nursing or palliative care.
Bear Cottage is staffed around the clock by a skilled care team
including nurses, physiotherapists, occupational therapists, visiting
medical staff and other relevant professionals, to provide palliative
care for sick children, while their families have a break.
A state-wide service
Although Bear Cottage is owned and operated by The Childrens
Hospital at Westmead, its services are available to families from
anywhere in NSW, not just our patients.
Who has helped so far?
Thank you to our community and corporate supporters who have raised
over $10 million for the establishment of Bear Cottage. Major
donors include Clubs NSW, Lions Clubs of District 201N5 and Radio
2UE Sydney.
Bear Cottage depends on you
Bear Cottage not only affirms the quality of life of our sickest
children, it also affirms the quality of life of their families.
With anticipated operating costs around $1.5 million each year,
we need your continuing support to run Bear Cottage. Gift-giving
programs include tax-deductible donations, endowments and bequests
to allow corporate, community and individual financial support
for the Bear Cottage program. Support can also be given to specified
areas within Bear Cottage. Please show that you care, by helping
us care for the sickest children in our community. If you would
like more information or would like to support Bear Cottage please
call the fundraising department at the Childrens Hospital
at Westmead on 9845 3367.
In
August 1999, at the age of three, our daughter Courtney was
diagnosed with multiple tumours in her brain and spine. Her
prognosis was not good, so when Bear Cottage was suggested
to us by Courtneys oncologist, we booked in for a weeks
break. Living with a terminally ill child and the constant
care, attention and medications they need can become physically
and emotionally draining. However, compared with most families
in our situation we were able to talk and laugh with Courtney
and for most of the time she was able to get around by herself.
We really only stopped feeling sorry for ourselves after we
came to Bear Cottage and saw what other families have to endure.
Courtney and her brother and sister were totally spoiled and
enjoyed ever minute of it. We were able to go out for dinner
for the first time in eighteen months. Our one week holiday
was extended to two as none of us wanted to leave. A short
time after our first stay, Courtney took a turn for the worse
and was taken to The Childrens Hospital at Westmead
where she was placed on life support. Three days later when
the breathing apparatus was removed, she breathed by herself
and was soon able to talk to us. At Courtneys request,
she was transferred to Bear Cottage where it was such a relief
to be among the friendly faces which she knew. Sadly, this
was only for a couple of days, but when she became ill on
the night she died, Bear Cottage was where she wanted to be.
Courtney died in our arms that night after having her extreme
pain brought under control by the staff. For two or three
days after her death, we stayed at Bear Cottage with her.
It was of tremendous benefit to be able to say our goodbyes
and to be with her whenever we felt the need. It is of great
comfort to know that other families who are yet to visit Bear
Cottage will no doubt receive the same comfort and support
as we did. |
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